Posted on: February 01, 2025
BSNA welcomes the launch of the first International Day on Intestinal Failure today (1 February 2025)
BSNA is delighted to welcome the launch of the first International Day on Intestinal Failure, coordinated by the Leading Intestinal Failure Equality (LIFE) initiative. LIFE is dedicated to raising awareness of IF, the challenges faced by individuals living with the condition, and calls to address the significant disparities in care that currently exist across Europe.
IF is a life-threatening condition that impairs the body’s ability to absorb vital nutrients and fluids due to significant loss of gut function.[1] It often results in prolonged hospitalisations and numerous distressing medical procedures, that can have a destructive impact on quality of life. Many patients rely on life-saving home parenteral nutrition (HPN), which is considered the gold-standard of care. However, its availability varies significantly between, and within, countries and IF continues to be under-recognised and underfunded across Europe.
“The launch of 1F Day marks an urgent call to action for policymakers, healthcare professionals, and those affected by IF,” says Professor Stéphane Schneider, chair of the LIFE initiative. “Too many patients across Europe are unable to access life-saving therapy simply because of where they live, forcing them to travel long distances or suffer without adequate care. On 1F Day, we drive awareness among stakeholders, calling for systematic change: robust protocols and an equal standard of care through better collaboration across Europe.”
Commenting on the launch and the LIFE campaign, Declan O'Brien, Director General at BSNA said,
"Raising awareness of Intestinal Failure (IF) and its treatment options is an important first step in securing action to address the significant disparities in access to care and resources across Europe. BSNA supports this campaign to ensure no patients are left to face debilitating challenges without adequate care and support."
The LIFE initiative recently published its manifesto calling for early diagnosis, comprehensive care, equitable access to IF treatment and enhanced collaboration through data sharing and partnerships. Supporters can join the conversation on social media using the hashtag #1FDay.
About LIFE
LIFE is a non-profit initiative overseen by a steering group of leading experts in intestinal failure. It complements the long-standing Optimal Nutritional Care for All (ONCA) campaign, which is implemented in 20 European countries.
For more information, visit www.intestinalfailure.org
Contact:
LIFE Secretariat
References
[1] Pironi, L. et al. ESPEN guidelines on chronic intestinal failure in adults – Update 2023. Clinical Nutrition. 42(2023). 1940–2021